SHARK ATTACK!!

 

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Lately my world feels like life under siege.

Last Saturday morning Rascal our Australian Shepherd crashed open the door to my upstairs studio, apparently to roust me from peacefully writing.  He didn’t flop down on the floor with his usual “I am so fed up with being ignored” doggy sigh.  He stood dead center in the doorway, looking at me with his one blind old doggy eye.  Trouble. I just knew it was Owen.  I was being summoned.

I had left Owen in a warm bath in a warm room, earlier that morning.  Too early, since he rises at crack of dawn every day of the week.  I gave him a plate of snacks and he brought along some favored plastic bottles, plus his arsenal of plastic toy guns, which to Owen are more like objets d’art.  A crowded but contented bath. Seemed to me like a good moment for some Saturday morning writing, while Edward snored peacefully recovering from his busy week.

But naked Owen had ditched his tub, and was downstairs.  Into things. Oh well.  I thanked Rascal, and called Owen up and began to help him dress, when the two pieces of shopping card in his hand stopped me. Oh. No.

Racing downstairs, I found my purse sitting on the chair beside the phone, right where I had left it–but under a fluttering mound of papers.  I dived into them, flipping through the mound of folded bills and tickets that fluttered to the floor.  “What did I do to make you do this?” I asked of Owen, God, and the universe as I searched back and forth through flyers and grocery receipts. “Didn’t I run a nice warm bath?  and get you a plate of snacks this morning?–  WHERE are those credit cards?  where are ANY cards?–Don’t I constantly wash your clothes?! Cook your food?! –No cards at all – I clean up your stuff! – tidy house! – daily make your bed up clean and fresh!!”  There were  no cards in Owen’s collection drawer – no cards on the kitchen counters.  “Edward!! help!” I howled as I carried on my interior rant and prayer–“Is this pay backs Owen? for going out with Dad last night? leaving you home with a sitter? good grief–- Please not the driver’s license! let me not have to hassle with MVA– Or am I reading in unnecessary motives? Is the sheer delight of hacking up enough incentive all by itself?”

Edward found them.  A fat handful of chopped cards in the bottom of the little trash basket in the study.  Credit cards, ID cards, bank cards, gift cards, health savings account card, insurance cards.  Bonanza. All chopped into large pieces. No– not all.  Owen left me my driver’s ID and one credit card intact. Maybe Mom’s face on the driver’s license was enough to protect that one. Some prayers were answered. He must have been working fast though – no time for mutilation. But, his bloodlust not yet assuaged, every little plastic card on Edward’s key ring was cropped too.  Later on we found a few recently potted up hosta plants un-potted, and languishing under a bush, beside their empty pots.  Wow. He really needed to send a message.

But what, exactly, would that message be?  What, and also Why?

Pointless questions, Wystan.

Something has to be done.

Besides helpless outrage.

And tightness in the chest.

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Because I grew up in a home where such a breach of etiquette as chopping up your mother and father’s credit cards almost certainly would have resulted in outbursts of rage and corporal punishment, I have a strong urge to yell and spank or smack to let Owen know that he really REALLY REALLY can’t do this kind of thing!!!!!!!!!!!!!!!!  My primal self wants to solve this problem as I have seen it solved, and the primal part of all humans that responds to the law of “an eye for an eye” tells me that this might just drive the message home.

Years and years of experience I have taught me otherwise. Yelling and hitting doesn’t communicate much to Owen except “oh oh storm warning! hide your head she’s angry again.”  And the better, higher part of my mind believes that violence is not actually the best solution to any problem.

BUT WHAT THEN ? yell my thumping pulse and beating heart of the caveman part of myself.  THERE HAS TO BE A CONSEQUENCE!!

Yes I think wearily. There will have to be a consequence.  But what?  Situations like this tax my creative thinking, in my role as police officer, judge, jury, and warden.  Edward supports me, we work as a team, but the weight of “what to do” and the implementation of it rests heavily on my shoulders.

Whatever the “consequence,” it’s not likely to stop Owen from doing this again. The only way to do that is to hide my purse. First of all, he doesn’t understand the crime.  Not really. We let him cut up bottles — but then not bottles that “belong to someone else.” What does that mean? He will be praised for grabbing plastic bottles out of the woods, but if he grabs up someone’s soda at lunch and pours it out on the floor, or makes a move to hook the driver’s tempting green bottle on his way out of the van in the afternoon, he will be seriously scolded. But what’s the difference between this piece of plastic and that one?  I am pretty sure that Owen knows that he is not to go into my purse, but he has no real idea why – and the fact that it is forbidden only increases the appeal. What he wants to do, he does of couse, and whenever he possibly can.

Don’t you?

In the end, I confronted Owen and kept my temper, letting just words out come through my mouth, mostly not yelling, and not hitting except for one thwack on the top of his head.  For this I am grateful, I thank the Lord, and I credit respite: getting out with Edward the night before for some couple time, and getting my writing time in that morning, even though this made it possible for Owen to sneak out of his bath at all.  Getting respite is critical to caregivers, keeping us elastic, able to bounce instead of crack under pressure.

We “grounded” Owen to his room for an hour that morning, since that was something different to try to get through to him.  I have hidden the scissors (again).   I told him no scissors for three days. You have your plastic to cut – those are YOUR things.  You cannot cut MY things. No scissors if you cut MY things. 

Still I know that “MY,” (such an important word in human vocabulary), is hardly meaningful to Owen at all.  He doesn’t do pronouns. “MINE” and “YOURS” aren’t concrete words. They are abstract. What does “mine” look like? Owen lives in a very innocent, very small, very physical world, of which he is the star and center player.  He likes people, but his relationship to them is distant – he can only vaguely connect to their doings, their thoughts, or their wishes.  He has less concept of “property” than a two year old child, although I continuously talk to him about it.  He knows “I like this” and “I LOVE THIS!” or “I want” and “I WANT” but I doubt these feelings are framed in words, and a constant for him is near inability to express any of those desires to anyone else. He will say “no fank you,” or push my hand away, to indicate the opposite.

Strangely though, sometimes Owen is very sensitive to others’ emotions, and at unexpected times he will suddenly lovingly woozle someone (sometimes a near stranger) just when they need it. Just not their property I guess. His innocence is really ignorance, that also sometimes seems wise.

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Looking back on Saturday’s Shark Attack from the vantage point of my writer’s desk,  I  see now that the cause was almost certainly connected to doing the “Art Walk” at Bronwyn’s school the Thursday prior.  Walking into art galleries with Owen is an act of unbelievable bravery – kind of like juggling eggs.  I managed it that evening by directing Owen toward the little pile of student artists’ business cards at every stop.  He liked that a lot.  Even with two hands full, selecting another and anoth– (“Hey! Just ONE, Owen!”), he managed to work them, folding them into origami-ish disarray.  I am always struck by how quick and deft those hands can be, other times so limp and powerless.  And again other times how powerfully destructive!  Once he cut into a construction helmet with shears…

 

Anyway, it’s always hard for Owen to let go of an obsessive interest.  And it’s hard for him to see any kind of boundaries. I suppose I lit a fire and should have been on the watch for it to keep on burning. Handing him little cardboard cards, reminds him how very much he likes the nicer plastic ones – and inspired on a Saturday when his mom’s back is turned, the adventure of going to hunt up some up for himself is an irresistible challenge.  The appeal of being in trouble is almost irresistible anyway.  The worst thing in life is being ignored.

Isn’t it.

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Working the bottle Mom chopped for him

PS – Thanks Rascal, my blind old dog. Although I cannot ask you about it, I have to guess that you heard Owee cackling hysterically as he chopped (heh-heh-heh!), and you must know as well as I do what that means.  You put two and two together, and I am still impressed that you came to get me.

Naughty – or – Nice -?

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Looking back on it, weeks and weeks before Christmas, Owen was clearly getting ready for the big day.

He was with his sister Freya in the bathroom, attending to business.  This is where Owen says most of his interesting things. Owen said:

“Santa Claus.  Be nice. Be naughty.”

Freya was amused.

“Yep, be nice, Owen!” she laughed.

“Be naughty,” Owen said, all seriousness.

She felt the need to correct his misapprehension.

“Be nice for Santa!”

“Be naughty.”

“Owen. Be nice,” she insisted, wondering how long he would hold out.

“Be naughty,” said Owen.

 

This went on a while. I imagine Owen got the last word.

He must have been thinking about it a lot – almost everyone in the family was informed.  Words don’t come easily to Owen, usually it’s an effort to bring them forth.  When he really wants to drive a point home, he has a particular manner of speaking his few words, with his eyebrows way up and eyes wide open, his head tipped to one side, informing, admonishing.  “Be naughty!”  When Owen does this, he reminds me just slightly of my dad, when he wanted to emphasize something.  Owen’s grampa was a college professor who taught decades of Composition 101 classes to recognize good grammar and punctuation.  It’s funny feeling, when you recognize that a communication that is clearly of great importance, and you still have not the slightest idea what it means.. I imagine many college freshmen felt just the same way.

Maybe Owen sensed he wasn’t getting through to us, because once or twice in those weeks before Christmas he growled into the kitchen in his Ogre/Papa Bear voice, “BE NAUGHTY!” 

I wondered why this focus on the “Santa/be naughty/be nice” thing this year.  I was inclined to blame the group of older special needs people with whom Owen’s rides the van to his program each day.  They can be sweet and friendly, but they are kind of tough on codes of behavior.  If Owen is passing gas or burping they tend to get grossed out.  Giving his safety belt the slip is a moral issue.  I get a solemn report: “Owen was Bad today.”

Coming face to face with the culture of shame and blame surprised me.     A more innocent group of adults you really could not find, except maybe on another van full of special needs people.  They were just repeating what they had heard.  Still, before now, I had only experienced Owen’s school mates treating him with affection.  The transition to the real world has been a little hard. I have to laugh at my response, defensive for my perpetrator –  like a mom in juvenile hall — “Yeah? he passed gas!  SO?”  In the Simons household, the standard method for dealing with breaches of etiquette is humor.  Ours is a jolly and forgiving God.  Like Santa.

Morally speaking, I consider Owen pretty innocent.  Then again, nothing cracks him up like doing something naughty, or hearing someone else getting reamed out for doing something naughty (the dog, his little brother).  The people on Owen’s van had good reason for hoping he would shape up for Santa.  Instead they may have inspired a whole new level of naughty.

I guess I missed my tip-off.

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On Christmas morning, I came down feeling clever and rested.  I planned to finish the stocking stuffing early that morning while Owen was in the tub, rather than staying up late Christmas eve.  But a large pile of papers beside the Christmas tree.  Candy papers. Translucent papers from maple sugar creams.  White plastic peanut butter cup wrappers. Clear plastic wrappers.  Half a bar of raw dark chocolate, gnawed, abandoned.  And four tangerines, each with one bite from the center.  Owen, rising earlier, had clambered over the barricade we built on the landing, and poured out his siblings’ stocking candy out in the dark living room, and eaten it.  All.  Four stockings were flat and empty.  He didn’t touch the parental stockings.  The whole thing reeked of intentionality.

For some reason, Owen had never thought of this past Christmas mornings.  Maybe he had and lacked sufficient daring. I struggled with shock, complete outrage, and feeling stupid.  How could he do such a thing?? My plans for this morning were broken.  Owen had “scribbled on my page” and I reeled like a preschool child.  Scolding and fussing, waking the household with my rant,  I put Owen into a tepid bath.  I reflected that I would never be able to write about this event.  I would never find anything Owen did to be funny again. Probably I would have to stop writing.  Unable to go forward, I left for a healing walk in the woods with the dogs, kindly accompanied by my daughter Bronwyn.

The walk was a good idea.  I cam home to find my husband re-stocking the stockings, divvying up the parental stash between the three other kids.  Daughter Freya was making Christmas breakfast.  Smells of bacon and cinnamon filled the air.  Oskar was setting the table.  I made Owee apologize to each of his siblings, and we went on to enjoy a lovely Christmas together.  Owen was pretty quiet.  His tummy can’t have been feeling too good.

 

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Well.  No one can say he didn’t warn us.  And at this point I can see the humor in it.  But I’m not telling the people on his van.

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Christmas night, Owen re-lives his day’s misdeeds…

 

 

 

Sleep Like a Dog. Then Wake Up

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My friend Lori was writing this week about her son Ben and his sleepless night.  Usually Lori posts about marriage support (she and her husband John are marriage counselors) on her blog Caring for Marriage.  But a family member with special needs tends to make a pretty large impact on a marriage – so sometimes she posts about Ben too.  Or her other kids.

Maybe there is something in the air.  Owen and I have also been pretty sleepless, rendezvous-ing the last two nights in the kitchen around 3:30am.   I never know what wakes me (us), and I am inclined to blame Rascal my neurotic Australian Shepherd. (The Aussie is never confident about the safest place to sleep  – central location top of the stairs to protect his flock from all those terrible things out there? Or right next to mom’s bedside to be protected from all those terrible things out there?)

To be fair to the dog, guys like Owen and Ben commonly have disrupted sleep patterns.  It could be that some inner connection to Owen wakes me long before I physically hear him.  Or it could be years of experience. I have wondered, nights when I am lying there wide awake, what it is about.   But I tend to sleep lightly anyway, while my husband and the Boston Bulldog generally sleep like the dead.  Either way, by the time I heard crashes in the kitchen early this morning I had already moved the Aussie twice and lain awake (like the Aussie) worrying.  Maybe Owen had been doing that too.

Lori and I have in common that we aren’t finding it any easier to deal with broken sleep cheerfully in middle age.  She says she glares; I tend to fuss like Donald Duck in a fit. (You’ve seen the cartoon?)  However on this second night I found myself better able to consider things from Owen’s point of view rather than my own sleep-deprived rage.  Lori’s post gave me the gift of a sense of community.  Lori, Ben, Wystan, Owen, the neurotic Rascal, and who knows how many others out there are enduring this phenomenon together.

I shepherded Owen toward the digital kitchen clock and showed him the numbers “3:30” there.  Three is time to be in bed, I said.  I asked what did he want? was he thirsty? I sent him back upstairs with a glass of water.  I tucked him in.   And Owen seemed calmed.  He didn’t get up again, although I am not sure he slept.  Basically I found myself acknowledging through my tone of voice and peaceful manner that he has his own inner life and possibly his own reasons to be up.  Owen was probably surprised by this zen version of the nighttime encounter with mom.   I couldn’t have been so zen about it had I not read Lori’s musings earlier that day:

“…While I have plenty of phrases at my fingertips with which to express my side of Life with Ben, he does not. So he yells. His hurt is probably as legitimate as mine, his distress as deep.” 

Yeah.  Owen has always had times when he seems more frustrated, more restless, more zoned out, less communicative.  And lately it has been one of those one of those times.  Reflecting some more on what Lori writes, I am getting the strong impression that my job in Owen’s life is to be to a connector.  It’s not a job I am sure I want.  But I see what a difference it makes when someone is helping him meet people, helping him to make sense of sounds, images, smells, events (why are we here, now?) – helping decode all the incoming sensory experience, connect the dots, make sense of the chaos.  Owen becomes a different person the more I treat him like someone who understands things, but just needs support.

I suspect that there is a lot more going on in that curly head than me or most other people know.  But because of the potential I think is there, often my response is to get mad when Owen masks what I think (hope?) he is capable of.  Owen’s disability is an intellectual disability.  Helping him overcome it will never be straightforward or visible, like attaching a prosthesis to replace a missing limb.  The people who see potential in Owen are his prosthesis.  It is we, or no one,  who will to find a way to bridge the gap, and connect Owen to his world.

But...am I willing to give up my own agenda to do that?  

Better sleep on it.

Read more about Lori’s blog and how to receive it here – http://archive.aweber.com/marriagemoats/5E4Mv/h/Marriage_Moats_Pray_for_Ben.htm

Laughing in Church

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Owen curls forward on the church pew, close to touching his curly head to the back of the cotton dress shirt of the man in front of him. He is snarffing in the crook of his arm.  Despite the fact that he is stuffing his mouth into his sleeve, little noises are escaping.  He turns to look at me, trying with his whole body to repress the mirth that is crinkling his eyes up and shaking his body.

That’s new.  Owen frequently laughs in church.  What’s different today is that he truly has a case of the giggles, and he’s trying so hard to repress them.  His genuine, forbidden, over-spilling mirth is contagious, and I find myself (veteran that I am) fighting the upturning corners of my mouth.  I shake my head at him.  I wonder what the joke is.

I slid in next to Edward and the boys a little late this morning, since I brought snacks this week and got caught up in chatting in the church kitchen.  Our placement in the back of the center row of pews is Edward’s choice.  I can’t help worrying whether the family in the row ahead of us sat there after Edward and the boys came in, fully conscious of what they might be putting themselves through, or if they were there first and we joined them.  This particular family already puts up with a lot from Owen, since they happen to be our next door neighbors.  Personally, I believe in spreading the love around a little.  But Edward is cheerfully oblivious to these sorts of subtleties.  Lucky guy.

Owen’s noises are pretty famous at our church, after all these years.  People there knew him when he was a yappy, fussy baby, a paper crinkling toddler, and an occasional speaker.  More recently he’s been a plastic twister and snapper.  Thankfully, he seems to have moved through the recent phase of letting the most amazing belches fly in that quiet space. (Cross fingers and knock on wood, if that isn’t inconsistent.)  Every Sunday we would wonder, what is it about church? One Sunday during services last summer, Owen really let ‘er rip.  One of our friends said kindly afterward that he felt the relief from that belch himself from three rows back.

Owen is an innocent fellow.  I’m just not sure how innocent.  He has always been amused by being a pest, prone to chortling at other people’s irritation.  And innocent or not, I draw the line at his new tendency to lean over to one side the better to release the noxious gasses that are roiling in his gut.  Giggling mom and Owen exit church to find a seat in the foyer.  A complete calm falls over him there, and he sighs as we sit together in the chairs against the wall in the carpeted reception area. I can still hear the sermon, but I am distracted.  I keep wondering What was so funny? and is he doing it on purpose?

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Loot and Pillage

IMG_0366The day of the Baltimore riots, I was supposed to be writing a post for this blog.  I couldn’t focus, and as you know, I missed posting that week altogether.  I couldn’t see a way to connect the life of Owen to the crisis there, and what was happening there was all my brain could hold.

In the days since that Monday I have watched and listened as people respond to an experience of chaos, most of us from the outside, most of us without firsthand experience of life in that part of Baltimore or the lives of those who swept through and looted it.  On FaceBook and in person, I have interacted with people who are offended or angry, who protest against or at least wonder about any helping such a set of losers that they would set fire to their own homes, as it were. I have read people speak dismissively of the angry, violent Baltimoreans as individuals so (dumb, violent, ignorant, thuggish) as to be beyond pity, and beyond help.  Isn’t a situation like that, and anyone who would act as irrationally as that, hopeless?

Last weekend, as I found Owen emptying his second super-sized bottle of Neutrogena dandruff shampoo into the sink, having already gotten in big trouble for emptying the first super-sized bottle about three days earlier, I had an acute sense of the hopelessness of the cycle we were in.  Hopelessness does not describe how Owen felt however, since that afternoon at the doggie park he tried persistently to get to other peoples’ bottles of water for their dogs, because he wanted to rip them up.  I drew him away several times, but finally just as we were leaving he charged over and poured a river of Mountain Dew out of a beautiful green bottle.  The dog owners sat watching him in uncertain silence.  Who does something like that? (We found four quarters in the car for Owen to give the poor shocked former owner of that Mountain Dew.)

It is not acceptable to pour out expensive bottles of shampoo.  And regardless of how much you want it, or how frustrated by not having it, it is not ok to grab someone else’s soda and pour out the contents on the ground.  Society is dependent on people NOT committing random destructive acts of this kind.

But Owen does insensitive, destructive, invasive things pretty regularly.  And day after day, week after week, year after year, Owen’s family can only redirect and educate him that he cannot do them.

The reader may be offended that I compare anything about my mentally handicapped son to those people who became angry and violent in Baltimore.  Certainly, the two are not the same.  The actions of a mentally handicapped child-man arise from a different intention, a different set of needs, and a very different level of intelligence.  Owen can barely be held responsible for his behaviors, and the adults and children who looted stores must be held accountable.

But still I found myself seeing a connection.   People who cannot speak, or feel themselves without a voice, will sometimes use strange and inappropriate ways of letting the world know how they feel.  It is our job, as receivers of a disruptive communication, to decide what to do with the incoming information, or to walk away.

As I shampooed Owen’s hair this morning with a sweet smelling shampoo product, I had to smile.  Why was it the two super-sized bottles of strong smelling tar shampoo that were pitched – and not this one? Owen really loves ALL bottles, but I don’t think he has ever gone for the gentle-smelling organic shampoo.  Could it be that the products that Owen dumps out are not usually the ones he likes to use?  Maybe a super-size number of shampoos with dandruff shampoo was more than Owen could bear, and he took matters into his own hands.

Or maybe I am reading this motive in.

But it’s a place to start.  I believe Owen will learn to communicate better, slowly, over time, with a lot of encouragement;  it is going to be a long process.  Frustrated as I get though I am not ready to consider his pillaging a hopeless dead end.  So far I have not taken off for California.  Like my brothers and sisters the looted and pillaged of Baltimore, I get out my broom to sweep up the streets.