Owen Meets the Police

IMG_0955

It was another gorgeous July day in Boulder Colorado – the day after Owen’s brother Scott’s wedding in fact.  Owen’s mom was busy in the kitchen. Owen objected to his mom being busy.  Or — was he was inspired by it?  The more frantically she was getting ready, the more busy he was likely to be himself.  This morning a post-wedding brunch was planned, but no one had talked to him about it.  All Owen knew was that he had spent a lot of time sitting yesterday, and he wanted a walk.

He slipped out the front door of the rental home his family was staying in. The quiet streets of Boulder beckoned, shaded by the lofty and carefully watered  maples, oaks, and pines.  Owen lifted the latch on the gate to the front path, re-latched it, and no doubt he grinned as he eddied off to the right down the sidewalk.  Only a few days ago he had walked this way with his parents and his brother Oskar, out from under those tall trees, along sidewalks and across streets, through the University of Colorado campus and into Boulder downtown, with its shops and restaurants.  He liked it and wanted to go again.

Owen did not get far in his ramble, eyes searching sidewalk and curb for interesting gravel, when his eye, his imagination, and possibly his sense of mischief were captured by the green backyard of an unlucky neighbor.  This neighbor had unwisely chosen not to put up any fence.  Back Owen wandered, to forage in the gardens and leaves —alas! No recycling bin!

In his constant quest for interesting plastic, Owen entered the back door of the house hopefully.  A woman who had been used to calling this space her home was alarmed shortly after to find a young man prowling about her kitchen.  A strange young man – some dangerous, drugged up student from the university no doubt!  She yelled to her husband for help as Owee eddied out the backdoor again.  This house did not have good plastic energy.

The husband of the frightened homeowner followed after Owen, out the back door, around the side lawn, and out onto the sidewalk again.  Quickly recognizing him as a non-dangerous individual, but possibly one in danger, this man continued to follow after Owen, through the fence, across the concrete school yard, making one-sided conversation,  and hoping to redirect him.  Apparently Owne did not have any interest in re-direction.  But when the school yard gave way onto a junction of streets, the man was able to convince Owen to eddy back toward “his mother” and the quieter street away from city traffic.

What did Owen think of this poor man and woman, whose Saturday morning lives he had invaded?  Owen’s mom wishes she knew.

A few doors down that Boulder street, Owen’s mom had all hands on deck chopping fruit and vegetables and making iced tea for a wedding brunch.  Owen’s dad was out buying a few groceries.  Owen’s sitter, his cousin Rachel, had been given a much-deserved sleep-in that morning, after her long day of Owee maintenance at the wedding and reception.  Owen’s mom was just asking who had seen Owen last–?  Her internal Owen-o-meter was sounding.  This rental house was big, with a generous yard to explore, and was fenced wonderfully with a series of latched gates.  Plenty to keep Owen busy.  But why did she feel uneasy?

Her unease changed to irritation as she learned that no one could find Owen, upstairs or down, nor did he seem to be anywhere in that wonderful fenced yard.  Why today? How can he always tell the worst possible moment?  She thought, expressing her worry and uncertainty as anger, in her usual manner.  You just never knew when he would be calm or not – but guaranteed at the most unexpected moment —!  Indecision made her crosser.  She knew from long experience that these rare and sporadic wanderings could either result in a quick catch, or a protracted search – but either way you never knew which direction to head out of 360 possible degrees.  Owen was never far off…so far… always turned up right nearby…but never came when called, even if he was right there behind a tree the whole time.

Arriving downstairs to find chaos in their midst, cousin Rachel sprang breakfast-less into action.  Luckily for her aunt, she had an existing interest in and experience with caring for special needs people.  And maybe hours spent with Owen in days before had developed her Owee-senses.  In any case, her Owee-senses seemed to be tingling.   She headed out the front door, toward the gate, toward the sidewalk.  She found the gate latched, but stepped through and as she wondered what to do next, caught a snatch of conversation between two passersby, “I don’t know who he is!…”   That clue was enough to send her off to the right

And there down the sidewalk came Owen!  A gentleman followed him, and explained that his wife had called the police.  Two police men were on the doorsteps moments later, and Rachel called Owen’s very relieved and irritated mother out to the porch to receive a routine lecture from the officers reminding her how important it was to “be careful.”

Was it worth it to Owen? All that effort – so little plastic discovered.  Really, his mother wanted to point out, there was much more opportunity for dumpster diving back at the house, with all the trash they were making.

But how can home stand up to the joy of the open road?

Later on Owen’s mother went to offer thanks and apologies to the kind neighbor man and for want of anything better, offer him the groceries her family would not be able to eat before departure.  It wasn’t hard to guess the house – the one without the fence of course.  She sighed and turned into the side yard to find the neighbor at work watering his trees and lawn. She thanked him.

The man responded as if he had been waiting for the opportunity to speak , at pains to impress upon this boy’s mom the danger of the situation – did she understand? The busy road beyond the school yard! the police! Owen’s nonverbal state!… He had thought of an idea for future however – a hospital bracelet!  In such a situation a hospital bracelet could provide the needed information and save a lot of trouble.  What would the police have done with the boy if they had taken charge of him?

She thanked the man, and left, groceries rejected.

He seemed like a kindly man, she thought , lowering her shoulders, taking deep breaths as she walked back.  A hospital bracelet.  Could it be that simple?  It would all depend…How to explain to someone like this kind gentleman that Owen loves scissors?  Also that Owen is a free spirit, one who takes pleasure in defeating efforts to be contained?  That his cognitive abilities, scattered most of the time, can come into focus when being (A.) denied access to or (B.) denied egress from?  Suddenly and unexpectedly, he can be very creative, and very quick.

There really is no way to explain Owen, she thought.

*                                 *                            *                          *

At home again, Owen’s mom and dad returned to their research on location devices.  What looked like the best choice said its wristband could not be cut with scissors.  It said it was completely waterproof.  It had GPS tracking and a radio signal.  The customer comments were mixed – some people said it was too big to even use.

Weeks later, a location device arrived by mail.  Owen’s parents opened the device package with excitement only to be disappointed.  It was HUGE – absurdly big for Owen’s thin wrist.  Owen would never wear that, his mother thought, and feeling defeated already, she left it in the packaging on the counter.  The whole thing felt too heavy to think about.  She only hoped she would have the intelligence to return the stupid gadget before they couldn’t get their money back.  It seemed demeaning to her.  In truth, she hated the giant black thing, and all that it symbolized in hers and Owen’s lives.  Her hopes had been raised and dashed.

IMG_1832

But Owen’s dad although mellow, is made of tough stuff.  With determined bulldog-ish optimism, he put that location device on Owen’s arm.  Owen seemed ok with it.  Owen’s dad began the process of registering the device online, testing it out.  It did not work.  Still, he figured, Owen may as well wear it and get used to it. He contacted the company for help.  Finally, he practiced “locating” Owen on the GPS map on his computer.  He showed Owen’s mom.  She began to feel to feel tentatively hopeful.

She showed Owen her watch, and then put his massive watch on him.  Owen seemed ok with it.  He kept it on.

After some false starts, Owen’s dad was able to locate Owen regularly, and know where he was went with his adult day care program.  Owen’s mom texted one afternoon, “Where are we? Can you find us?”  Owen’s dad could find them.

Owen’s dad is a pretty great guy, in his wonderful bulldoggish way.  Owen’s mom’s hero.   And the next time Owen meets the police, he can show them his really cool new watch.

IMG_1422

Dreams

 

IMG_1565

Hi Wystan! I had a very vivid dream last night about Owen! We were having dinner at your house and it was conveyed by Owen that he wanted everyone around the table to say something about him. As people said something like: you have really cool hair, or you are a really great guy, or I like the way you help set the table and so on…his head came up, he made eye contact with each person, smiled and then slowly and gently started having tears roll down his cheeks. Of course, we all started silently weeping too…After that was done, we all began to talk at once and eat but Owen stood there and just smiled. I don’t know what it means or if it should mean anything but it has left me very moved and I keep thinking about it since I woke up. Please share this with Ed. Hope you folks are doing well!Jim

When I began to fall in love with Owen’s father, the chance of our having a handicapped child was the farthest thing from either of our minds.   Wasting no time, like the two people who had seen too much of the dating scene, we handled the important stuff right from the first date: God and air conditioning preferences. Romaine lettuce over iceberg. We shared eccentric relative stories, family histories, memories of special lake vacation spots.  But even though I had a special needs brother and Edward had a special needs brother, the idea that we might one day be blessed with a special needs son simply didn’t make the agenda.  Amazingly that subject never came up.

We may not have prepared ourselves, but some other force seems to have been preparing me. Near the end of the four seasons while Edward and I fell in love and decided to marry, (I in grad school in Illinois and he in Maryland), I woke one morning in Chicago from a vivid dream.  I smiled at the sunlight reflecting on the ceiling of my room in Ridgewood Court.  Eyes open, I could still see the face of a baby.  This baby had been laughing down at me as I held him/her suspended in the air, joyfully – big red curls – a wonderful open mouthed smile.  I woke knowing that that baby’s name was Owen.

Cool dream!  It left me with a happy feeling — and I didn’t think too much more about it.  I may have thought “Wow! maybe Edward and I are going to have a red haired child!”  That wouldn’t be too surprising; Edward comes from a family of redheads.  I do remember later wishing for a curly red-haired daughter, tossing some coins into some grotto pool in Bermuda for fun during our honeymoon.

When, less than a year later, I was pregnant with our first child, we whittled the choices down to two Welsh names: Bronwyn and Owen.  Why Owen?  Did I remember the dream I had had?  I don’t know. It had to have been in the background of my consciousness at least.  When our first child turned out to be a girl with reddish curls I remember thinking that the dream I’d had must have been of her.  I remember Bronwyn’s first laughs vividly; she was a quick learner, a responsive, delightful baby.

Bronwyn had reached the advanced age of 13 months when our second child was born, a boy. We named him Owen.  However this baby looked nothing like the cherub in my dream, and I suspect had forgotten all about it. I was pretty tired and distracted by then.  Owen was a difficult fellow, kind of frail, low muscle tone, slow to develop, and always, always crying.  Months later, I am sure his first laugh was a momentous occasion – we waited a mighty long time for it – but I don’t remember it now.

Eventually little Owen rounded out, and did gurgle. By the time he was two he had juicy red curls and a cherubic face (when he wasn’t fussing).  He developed a wonderful laugh, and we did love it (or any responses from him) then or now. But for a long time I forgot that dream from my graduate student year.  Although the photo albums don’t show it, there were years of frustration with my unusual child, anger and un-acceptance of who he is, and what the situation was going to require of me.  I didn’t want to be doing that job, and the thought of being trapped spending years of my life caring for someone’s physical needs both suffocated and terrified me.

Today, as I reflect on the dream and the reality of Owen, I have to ask, what was it all about? Why did I have it?  If that dream was caused by body chemistry, love hormones, daydreams, what I ate, or other chemical factors alone, I cannot account for how that is possible.  The chemical explanation does not also explain the stories of many dreams I have heard about in which future events are suggested (sometimes to people who are not important players in a drama) or visitations made.

But if, at the other end of possible perspectives, we explain such a dream as guardian angels trying help out with a preview of one’s physical future, that still doesn’t explain it to me.  What possible use can it be to a human being to know a few years in advance that she will have a child with red hair and a cute grin?  Why would angels bother? Seems extremely unimportant in a world of human experience and suffering.  For me, any “explanation” of a dream like this must go deeper than a prediction of physical events or baby name suggestions.

But looking back on it now, from this 20 year perspective, I find I am comforted to re-see that baby face from the dream.  Perhaps the dream of Owen was preparation for hard times.  A reminder.  A sign, to look more carefully, to consider what lies within those things eyes can see.  Perhaps it was for right now, to remind me of what lies within the form of that less-than-cherubic young man I currently care for.  Getting up daily at 5 or 6 am, to help him strip his bed and climb into a bath, it’s easy to lose sight of anything larger or deeper than the physical weariness of chores in a darkening fall season.

As I prepared to post this piece this week,  I hunted through the albums still spread across the dining room table from my early September efforts to get family albums finished.  As I poured over, back and forth through pages of Owee pictures, looking for the “right one” to post, I realized I was looking for a photograph of that dream baby face.  Of course Owen never looked exactly like that dream.  And he certainly doesn’t look like that now.  That is, really, the point I say to myself.  The dream is a reminder of something so precious, something interior, that we don’t get to see all the time..

For me the inner Owen, the hidden part of him that is not described by legs and arms or his red curly hair, something I get flashes of now and then in his eyes and smile is well-described by the dream I had three years before his birth.  An angelic gin, drooling down on me and blessing my life, blessing our lives, with his bodily fluids and his presence in it.  Owen’s mental age is guessed to be very young – maybe three years old.  As he grows, the difference between his body and mind becomes more and more problematic in society – baby-men don’t fit in so well in this world.  They are not cute.  But when Owen’s body dies, I do believe his still three year old soul will travel on to the next phase of his life, and finish growing up there.

Given how unique every single human being is, given how much it takes to educate and civilize even one,  I simply don’t believe that all that remarkable individuality would be wasted on a 60, 70,80 year (or less) life span.  What a waste!  And nature as I know it, does not waste.  I believe there’s more.  In Owen’s case I expect he will finish his mental growing up in his next phase.  And since his life and mine have been so tied together here in the first phase, I really hope to get to see him in the next one.  Maybe we can get someone to explain the purpose of all he went through here.  By the time I am meeting up with a grown up Owen, maybe I will already understand.

And maybe it was a good thing that Edward and I didn’t connect the genetic dots, during those early days of our relationship.  I can’t regret our lack of worry.   It would have been too bad to go into the relationship anticipating future problems.  What could you really say?  Would I have chosen not to have him, knowing what I know now?  That subject is much more difficult for our kids, who two generations into the subject of special needs have the thought of it very much at the center of their consciousness.  Perhaps there is one real essential, when you are choosing a partner to share your life with: what do you believe about Life?  I mean where life comes from.  Whether it goes on forever.  Or stops with the end of the heartbeat?  To see all human life on earth as the first chapter of a continuum changes  what you do, and about what you put up with, after that.

Edward and I both figure this is just Owen’s first chapter, and ours too.  That thought buoys us up, and mitigates what would otherwise be unbearable sadness that this diminished life of shredding plastic and toilet accidents is all he gets to experience – and all we get to experience of him – and of life ourselves.

Is there life after life?  Do people who lived and died loving and open-hearted now as angels seek to bring us comfort? Do angels work unseen to inspire us onwards out of rage, incompetence, and melancholy?

How can we absolutely know?  And yet – we dream.

IMG_1586_crop